Anticipitory Grief falls under the category of complicated grief as it begins months and in some cases, years before the actual death. As described in the article below by Dr. Beth Erickson, I felt as if I, too was in an extended state of emergency as there were periods of time when I was overwhelmed with sadness. After all, doesn't every date, special memory etc. that we anticipate arriving cause a certain amount of stress, sadness as clearly every memory leading up to them becomes so vivid and the reality sets in, again that they are gone from our lives?
I could relate to this article as a whole as I experienced as much during my Father's illness, although I did not agree with the explanation regarding being 'prepared' for their death although I do understand that when we are aware that someone is nearing death, that we have the opportunity to share certain thoughts and feelings that we may not ordinarily have when sudden death occurs, so I accepted that and appreciated the article. But, there wasn't a time when my daughter was sick or my husband or my Father where I can say that I was prepared for them to be gone from my life forever. I never play-acted or entertained the thought of how life would be when they were dead.
Some of us are in the process of attempting a reconciliation with one or both of their parents, siblings and other relatives so I thought this article appropriate and hope others can relate and maybe find some understanding that will benefit their decision or maybe even shed some light on it. There may never be a decision made as this is a very personal choice, to make amends before we or someone close to us leaves this earth. We may just believe that it is not in our best interest.
Contrary to what we have been taught is yet another thought, that what's best for us is not always good for us. It may be very healing emotionally to forgive and to move forward even with the few resources we may have left and at the same time we have to consider the person's reaction to our deliberate (though well intentioned) actions. If we anticipate them and resign to accept them, good or bad then it's not an issue. But, if the reactions are going to cripple us, setting us back we have to ask ourselves if it will be worth it. A very personal choice.
If anyone has been a caregiver for their loved one who was dying, I would like to know how you felt during the time you cared for them and if you can relate to this article written by Dr. Beth Erickson. Also if you are in the process of a reconciliation with a family member where the relationship has been strained but you continue to hold out hope that possibly some aspects of this relationship could be mended by such a reconciliation, please share.
Thanks for reading.
Hugs,
Terry
_________________________________________________________________________________
WHAT IS ANTICIPATORY GRIEF?
By Beth Erickson, Ph.D.
Anticipatory grief is what happens when you know there will be a loss, but it has not yet occurred. This is what happens when a loved one is dying, and both the patient and their loved ones have time to prepare. Anticipatory grief is both the easiest and the hardest kind of grief to experience. It is marked by “stop and go” signals. With these losses, the handwriting is on the wall... but it doesn’t make coping with it easier.
Because you have time to prepare, you can begin to envision and rehearse your life without the person who is dying. This gift of time offers the opportunity to resolve any regrets you may have with or about your loved one. You can take this time to make amends with your loved one, and to tell him or her how you feel about them. Your loved one can do the same with you, and other family members. You can let go of anger or guilt. You also have the chance for delicate conversations about such sensitive topics as death, end of life wishes, and after-death preparation. You also have an opportunity to get information about your family.
One obvious drawback to anticipatory grief is witnessing your loved one’s struggle with death. As the loved one’s condition worsens, you may grieve with each downturn. You may experience feeling a sense of helplessness as your loved one fights for life. You may feel as if you are living with a pit in your stomach that won’t go away as you await death’s arrival. In addition, sometimes when people are facing death, their own fear, pain, or anger may make their personality seem to change from Dr. Jekyll to Mr. Hyde overnight or even from one moment to the next.
In my own case, when cancer ravaged my mother’s brain, she became psychotic and for a time didn’t know me. This was devastating to me. Thank goodness, her behavior did not last until the end of her life, and she regained her normal personality. But for some families, the ones we love continue to have behavioral changes as they face the end of life. This can be challenging, and healthcare professionals such as hospice workers or counselors may be able to help.
Perhaps the most difficult challenge with anticipatory grief is that it is difficult to tolerate living in a state of emergency for an extended period of time. The mind can only tolerate so much angst. When a loved one is dying, the “emergency” and angst period may seem to last forever. You do not want your loved one’s death to come more quickly, yet your mind may not be able to handle any prolongation. Your mind may blank out self-protectively.
But eventually, a reminder or a new episode with the loved one sets off the grief again. Here, intense grief comes in waves alternating with times of numbness. These “stop and go” signals allow you to shut down emotionally. This insulates you before the next event occurs. Then, your grief begins anew. These flat periods can be looked at as natural, normal, and welcome respite from the agony of the loss. They do not mean you are cold or uncaring.
Anticipatory grief is normal. It is an important part of coping with a loved one’s extended illness. It prepares both you and your loved one for the end of life. Unfortunately, it may also be an emotional roller coaster. If you can expect that and understand that, you can help yourself cope with it. Don’t feel guilty about anything you may be feeling. Instead, make the best out of each moment you can spend with your loved one, and focus on the positives, such as forgiveness, settling affairs, and helping your loved one make plans for their passing.