Dear Kerrie,
Thank You for sharing the address for this wonderful site set up for Dominic. The Independent article, Dom's Eulogy and "My Life" honors him in such a beautiful way. He is so very beautiful.
My Michelle also died in Children's Hospital and like Dom, had a very strong life force and was always optimistic, loving life. Many learned a lot about life from them both.
Does the Hospital offer a support group that you could attend? It helped me greatly to be with other parents who had lost their babies so young, too and at times, to similar illness.
With any of my children, especially Jeff as he's the reason I searched for a support group online, I could never imagine living the 'rest' of my life without my babies. It really is one day at a time. And, when I made it through that day, it felt good as I had accomplished a great feat in my mind.
I always tried to do a little something for myself everyday and that always seemed to help. But, it took a very long time for it to become genuine. It was more like, fake it until you make it sort of motions. I have to say that my faith has always sustained me. Given me the strength to continue, and not just continue on with life, but to enjoy living it again.
All I can offer you is my love, my support and the certainty that in time, the pain will become different. Not so unbearable and not for the length of time the way it is feeling now. The early weeks, months and even years are very difficult and takes a conscious effort to even get out of bed and set simple short term goals such as, going to the store or doing a load of wash. So many, who do not walk in our shoes take these 'little' and 'easy' tasks for granted as it is really an accomplishment to be able to perform life's everyday mundane chores when feeling such intense pain.
I'm so sorry you're having to live without Dominic. These Holiday's are brutal and I know that I will breathe a little easier when they are over. I agree with you and what others have told you, that the Holiday's can be overwhelming, although it doesn't seem possible that this pain could get any worse, but it sure does around any date that involves our precious babies.
Know I care and I'm here for you. We are all here for you.
And, thank you again for sharing Dominic's Story. It truly touched my heart.
You have my love,
Terry