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Child Loss / Re: SOS - IMMEDIATE NEED
« on: March 15, 2009, 05:33:20 PM »
My son Patrick (PJ) passed away on 2/7/09 just four days after his 26th Birthday, he died of liver failure related to a rare genetic disease called Alstrom's Syndrome. I cannot help feeling that if I had gotten him to the hospital sooner he would have gotten his liver and kidney transplants that we waited nine years for;even though the Doctors tell me otherwise. How do you get over the guilt that your child trusted you to make the right decisions for them? He was also blind, so he did rely on me. I just want to go to sleep and not feel so lonely anymore-he was my best friend and hero, his father left 11 years ago, so it has just been the two of us.
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